PRESS * LECTURES * ABOUT
An Ordinary Day is the first of its kind and the press on the project has already been remarkable. Outlets include- NY 1, ABC News, PDN, Cosmopolitan, Daily Mail, New York Family Magazine, Popsugar, The Mighty, Huffington Post, Publishers Weekly and Global Genes have all featured An Ordinary Day, and the Kickstarter campaign, eached its goal of $29,000.
Andrew Solomon writer and lecturer on psychology, politics, and the arts; winner of the National Book Award; and an activist in LGBT rights, mental health, and the arts has agreed to write a note of support of the book. Daniel McArthur of Harvard/MIT ‘s Broad institute has written an introduction for the book as well. In the past several months, Karen has lectured at Rutgers University, 92y in Manhattan, JCC in Manhattan, Ovid, Counsyl, Global Genes.
Photographer Highlights Kids With Rare Genetic Conditions In Stunning Photos https://www.huffingtonpost.com/entry/photographer-highlights-kids-with-rare-genetic-conditions-in-stunning-photos_us_59ea3b72e4b00f08619ea06d “For two years, photographer Karen Haberberg has worked to shed light on children with rare genetic conditions through a book made up of stunning photos.”
New Photo Book Captures the Struggles and Triumphs of Kids with Rare Genetic Conditions “In An Ordinary Day: Kids with Rare Genetic Conditions, acclaimed New York photographer and mom of two Karen Haberberg invites us into the lives of 27 families caring for kids living with rare genetic conditions. In doing so, Haberberg manages capture the struggles, love, and miracles that make up their lives with honesty and heart. And as I was reading, I felt as though I was right there with each family.”
https://www.featureshoot.com/2017/11/photographer-captures-day-life-children-rare-genetic-conditions/“Haberberg mentions in her introduction the isolation felt by families of children living with rare genetic diseases— there is sometimes bullying, she says— and her thoughts are echoed in some of the families’ testimonies. Still, An Ordinary Day is about togetherness more than it is about loneliness. Elizabeth, Kelly’s mom, wrote the photographer a long letter when she received the pictures. Her last line was, “You are now family.”
These Very Ordinary Photos Challenge How we Look at “Special Needs” Kids http://www.refinery29.com/2017/10/176829/special-needs-child-photos-karen-haberberg“In her new book, An Ordinary Day, acclaimed NYC photographer Karen Haberberg is spotlighting the little-seen world of families raising medically complex children. Though by definition a rare genetic disease is uncommon, these photos show just how ordinary life can still be in the midst of one.”
http://www.dailymail.co.uk/femail/article-4998440/Photos-feature-lives-kids-rare-genetic-conditions.html“A touching series of photos show what it’s like to raise children with rare genetic conditions, and how some of them have grown into talented swimmers and cheerleaders despite their symptoms.
Photographer Karen Haberberg has captured the lives of 27 children who have rare genetic diseases. Those conditions affect one out of 10 Americans, but 95 percent of them do not currently have an FDA-approved drug treatment.”
BOOKS FOR BETTER LIVING
http://www.booksforbetterliving.com/books-bring-us-joy-october-2017/ “A hundred years ago, Karen Haberberg’s book An Ordinary Day would be described as cultural anthropology. This book is a beautiful collection of photographs set next to intimate conversations with 27 children living with rare genetic conditions and their families. This volume sheds light on the extraordinary and unique experiences that often get overlooked. It does so in the simplest way: by shining a light on the ordinary, everyday moments of those who seem, on the surface, to be unlike ourselves.”
http://www.nypress.com/local-news/20170927/the-faces-of-rare-disease “Karen Haberberg was so determined to tell the story of children with rare genetic diseases that she brought her camera into some of their homes to capture their everyday lives. Her young subjects are afflicted with conditions such as Tay-Sachs disease, Marfan Syndrome and Polymicrogyria, which although they sound uncommon, affect one in 10 Americans altogether.”
“Her photo book, “An Ordinary Day: Kids With Rare Genetic Conditions,” which benefits genetic research, will be released on October 17th. It takes us into 27 homes and through poignant photos with accompanying narrative text, illustrates not only the plight of the children, whose symptoms often include the inability to walk, talk or eat, but the struggles of their parents and siblings. Through their sick children, however, the families learn to appreciate each day and never take anything for granted, including simple accomplishments like getting their child on a school bus or into a McDonald’s.” Also published here: http://www.westsidespirit.com/local-news/20170927/the-faces-of-rare-disease Also published here: http://www.otdowntown.com/local-news/20170927/the-faces-of-rare-disease
Photographer Captures Daily Life of Rare Families with Dignity and Grace https://patientworthy.com/2017/11/13/photographer-highlights-kids-with-rare-conditions/“These photos provide an honest portrayal of what it means to be a family living with these challenges every day. Life, for all of us, is not only made up from the most inspirational and tragic points. It’s also of all the small moments in between: riding a swing set, facing off your dad for the last cookie.”
An Ordinary Day: Kids With Rare Genetic Conditions http://www.eparent.com/whats-happening/book-release-party-ordinary-day/
GREAT READING MATERIAL FIT FOR A VARIETY OF TASTES
Kids With Rare Genetic Conditions are Featured in this Photographer’s Book http://www.inspiringday.com/kids_with_rare_genetic_conditions_are_featured_in_this_photographer_s_book “An estimated 25-30 million people in the United States live with a rare disorder. Almost 12% of everyone in the United States. One photographer is bringing their stories to light. Karen Haberberg has dedicated the last two years to photographing children with rare genetic disorders. She has published them in a book titled “An Ordinary Day: Kids with Rare Genetic Conditions.”
Photography Book Focused on Rare Diseases http://www.raredr.com/conferences/gg2017/photography-book
Professional Photographer, Karen Haberberg, Captures Images of Rare Disease https://globalgenes.org/raredaily/professional-photographer-karen-haberberg-captures-images-of-rare-disease/
An Extraordinary Storyteller: Karen Haberberg http://www.newyorkfamily.com/an-extraordinary-storyteller-karen-haberberg/
The Ordinary Lives of Kids with Rare Genetic Diseases https://potd.pdnonline.com/2016/12/43524/
Project Believe: Photographer Aims to Raise Awareness for Rare Illnesses Through Photobook http://abcnews.go.com/Lifestyle/project-photographer-aims-raise-awareness-rare-illnesses-photobook/story?id=40616409
http://www.dailymail.co.uk/femail/article-3690717/It-incredibly-lonely-place-Woman-brother-died-age-three-rare-genetic-disease-captures-tender-images-kids-struggling-chronic-illness.html “A touching series of photos show what it’s like to raise children with rare genetic conditions, and how some of them have grown into talented swimmers and cheerleaders despite their symptoms.”
Seeing ‘An Ordinary Day’ In These Extraordinary Families’ Lives Raises Awareness Of Rare Genetic Conditions http://aplus.com/a/an-ordinary-day-photography-project?no_monetization=true “Unless you walk in the shoes of these people who have kids with special needs … you really have no idea what they’re going through.”
This Photo Series of Kids Who Have Genetic Diseases Is So Powerful http://www.cosmopolitan.com/lifestyle/news/a61326/photo-series-kids-genetic-diseases/
NEW YORK FAMILY MAGAZINE
How My Brother’s Early Death Inspired Me to Capture Families With Rare Conditions https://themighty.com/2016/07/finding-inspiration-after-losing-a-sibling-to-tay-sachs-disease/
Powerful Photos Celebrate Families Raising Children with Rare Genetic Disorders https://mymodernmet.com/karen-haberberg-ordinary-day/Inspired by her parents, who lost a child to Tay Sachs syndrome before she was born, and a close friend, whose child has Angelman Syndrome, photographer Karen Haberberg turned her camera toward 27 families raising children with rare genetic syndromes. The results are stunning portraits that speak to the courage of each family, shining a light on their often unheard stories. An Ordinary Day: Kids with Rare Genetic Conditions combines these photographs with interviews and text to explore the world of each family.
By highlighting the world of each family, Haberberg allows us to see them as individuals not defined by the genetic conditions that often create stereotypes around them. While not shying away from showing the difficult moments and incredible perseverance each family must have to confront even the smallest of tasks, she also reminds us that we are still talking about children.
NPPA THE VOICE OF JOURNALISM
http://www.rarerevolutionmagazine.com Cover Story
OUT OF BOUNDS RADIO SHOW
GIVNG BACK PODCAST
TODAYS EDEN PODCAST
FIRST TIME PARENT
BOOKS FOR BETTER LIVING
Karen Haberberg Photography | Photographer New York City‘s wonderful book spotlighting the lives of children with genetic diseases and their families, “An Ordinary Day”! It’s an absolutely beautiful and touching book providing awareness of these children. http://www.booksforbetterliving.com/books-bring-us-joy-oct…/
- http://www.westsidespirit.com/local-news/20170927/the-faces-of-rare-disease Also published here: http://www.otdowntown.com/local-news/20170927/the-faces-of-rare-disease
Photography Book Raises Awareness of Rare Illnesses – NY1 News
ABOUT KAREN HABERBERG
Karen Haberberg has spent twelve years as a professional photographer documenting stories of human resilience: the memories of a Holocaust survivor, the daily life of a developmentally disabled young adult working on a farm, and more recently, kids with rare genetic conditions. Karen’s parents lost their first child, Rafi, at age three; he died of Tay–Sachs disease before Karen was born. The memory of the child who died so young is never far from the family’s collective consciousness, and inspired the work on this project.
RECENT WORK EXPERIENCE
Karen is a New York City based lifestyle and portrait photographer. In addition to her freelance work, Karen teaches at New York University, the 92Y, the JCC of Manhattan and the International Center of Photography (ICP).
For nearly a decade, she served as the Director of Photography and Digital Media at the Jewish Community Center in Manhattan, where she spearheaded photography related programming for children and adults. Karen has also curated numerous exhibitions and collaborated with well-known photographers such as Annie Leibovitz, Elliot Erwitt, Joyce Tenneson, Gillian Laub, Bruce Davidson, among others.
Her photography has been shown in numerous gallery exhibitions, magazines and newspapers including the New York Times, The Wall Street Journal, The Daily News, Huffington Post, Time Out NY, Daily Mail, Cosmopolitan, New York Family Magazine, Forbes, and Fit Pregnancy. Her work was recently featured on ABC News and NY1.
Karen holds a BA from Brandeis University and earned her MA in Art and Photography from the ICP. She lives in Manhattan with her husband and two children Maya and Liam. For more information, visit Karen’s website at http://www.karenhaberberg.com.
Clients Include: Cancer Research Institute, Boehringer Ingelheim, Ogilvy, Counsyl, Epilespy Awareness, Lyft, Match.com, among others.