An Ordinary Day - Kids with Rare Genetic Conditions
Photographer/Author Karen Haberberg
An Ordinary Day displays photographs set against intimate conversations, presenting the stories of 27 families living with children with rare genetic conditions. Readers will fall in love with each child, share in their struggles and victories, and celebrate the life-affirming spirit captured in every image. The book–featuring interviews, along with unforgettable photographs–presents a transfixing narrative of struggles failed and battles won. These brave children include Ethan, a 7-year-old who is nonverbal, as he learns to sign to communicate his needs; Jonathan, a 9-year-old, as he finally is able to eat with a spoon after many failed trials; and Madison, a 5-year-old, as she takes her first step after years of crawling. These are all tasks that are taken for granted by families and children without these disorders, but are immense accomplishments and triumphs for children afflicted with rare genetic conditions. The intimate portraits in An Ordinary Day will inspire hope, empathy, and gratitude in all of us.
Piercing and unforgettable, An Ordinary Day illuminates what it means to be a family.
“In these moving photos and narratives, Karen Haberberg locates the joy and beauty in children whose lives are too easily relegated to darkness. Her images are not only humane, but also celebratory. They proceed from a great generosity of spirit and an intuitive sense of human dignity.”
– Andrew Solomon, PhD professor of clinical psychology at Columbia University, Pulitzer nominee & author of “Far from the Tree: Parents, Children, & the Search for Identity”
KAREN HABERBERG is a New York City-based portrait photographer and published author specializing in visual storytelling. Her photography has been shown in numerous gallery exhibitions, magazines, and newspapers including The New York Times, Wall Street Journal, The Daily News, Huffington Post, Time Out NY, Daily Mail, Cosmopolitan, New York Family, and Fit Pregnancy. Her first book, An Ordinary Day – Kids with Rare Genetic Conditions has been featured on ABC News , NY1, Out of Bounds Radio Show, among others. In addition, Haberberg teaches photography at the 92Y and JCC of Manhattan. Haberberg has also curated numerous exhibitions and collaborated with well-known photographers such as Annie Leibovitz, Elliot Erwitt, Joyce Tenneson, Gillian Laub, and Bruce Davidson. Haberberg holds a BA from Brandeis University and earned her MA in Art and Photography from the ICP. She lives in Manhattan with her husband and kids.